It Begins…


NaBloPoMo November 2016It’s NaBloPoMo time of year again. In spite of the chaos and emotional pain this year has been for me, I’ve committed to doing it. In part because writing is part of my therapy in life anyway.

Creating crochet, writing or music. One of those 3 things has always been present to help me get through, sort through, be through.

In childhood, it was my piano that expressed my soul the most. In early motherhood it was crochet that took the brunt.

As an adult, I haven’t had a lot of time to sit and craft at the piano. It requires a living room monopoly to do it and that’s not always possible.

These days it’s writing and crochet the most. And I so desperately need to find voice in any way I can.

Another reason for me not to give up the challenge though is because of the 8-9 years I’ve participated.

The idea that I’m not giving up all parts of me in this journey as a care partner (better label than care giver I think).

And in all these years of taking on this writers challenge, the only time I lost was one year thanks to Thanksgiving Day and no internet access to post for the day. (I have a smart phone now!)

NaBloPoMo was started 10 years ago. So, it’s kind become a part of my soul, being a part of it for so long.

I did take it a step further this year though. I decided to register and commit to posting every day in November for TWO blogs. My usual Aberrant Crochet blog. But also a new blog I’m formulating about glioblastoma.

I registered Frell Cancer nearly 9 months ago and haven’t written a single post yet. Its purpose is to help others who are desperately trying to get up to speed on what glioblastoma (GBM) is, treatments, studies, reality, etc.. Helping others in the GBM community was the point, because there’s so little support for people in that boat around the world. And most people don’t understand how it’s a different kind of cancer than everything else.

Victims always find themselves grappling with trying to educate their families while enduring the shelling that the glioblastoma fight often is. Such a fast, voracious cancer that threatens to destroy your very personality, identity, your relationships, etc.. Everything about you can change into someone you don’t recognize – overnight.

It’s so hard, and there’s a lot of fear. For good reason.

So…. NaBloPoMo will serve as the fire to propel me forward into assembling those posts for that blog. Besides, while I write whatever I want on Aberrant Crochet, I don’t want it to become all cancer all the time. And frankly, there’s a lot of pain in what we deal with in the GBM world. The posts I need to write will not be the most enjoyable kind.

The daily reality of glioblastoma is like living in a fire. It’s not something you really want to experience, unless you need to help someone. Unless you need to understand what families like ours face. These kinds of posts are the kind aimed at helping those who need it, in spite of how sad or shocking it may seem to others. The most efficient way to help those I seek to help most is simply to isolate those posts in one place that makes sense. So, I set aside a place for it. We’ll see how it goes.

Though to be clear, don’t think I’m never going to write about cancer here. I will. It’s more than just a slice of my reality now. And I have information I’m putting together that will help other cancers too. So there will be some cross posting.

You don’t have to be a seasoned NaBloPoMo challenger to know that unless you have nothing else to do, registering two blogs is stupid crazy. Especially if you’re like me and want every single post to count as a real exchange, or a real article. Not a throw-away post to say I posted, but ultimately, it’s crap.

But I think I have plenty I can share. More than anything, time management and structure will be the issue, not words I think.

So… here goes. Today’s the 1st day.

Wish me luck!

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Filed under Glioblastoma, NaBloPoMo

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